The Good, The Bad, And The Not Too Ugly

Catty doctor’s office receptionists are the worst. You are the first person a patient sees when coming to see that doctor. Please try to be positive and don’t talk rudely about patients even when the glass sliding doors are closed. We can still hear you!

But pharmacists who manage to override the system to make a medication go through insurance, that would otherwise cost $700, are awesome.

Though the would be $700 medication is another immune suppressant, just in time for cold and flu season. Oh well, it could be worse.

-Erika


worldaccordingtolupus:

Chronic Pain Awareness Month: a pic I designed for my page World According to Lupus www.facebook.com/worldaccordingtolupus

worldaccordingtolupus:

Chronic Pain Awareness Month: a pic I designed for my page World According to Lupus www.facebook.com/worldaccordingtolupus

(via cr8tifleeme)


"Ice, ice, baby!"

-Erika

"Ice, ice, baby!"

-Erika


Muscle Retraining

While muscle retraining therapy has hurt so bad, the reward is getting covered with bags of ice when I’m done. Surprisingly, that feels so good.

If I keep making progress like I am (like working insanely hard), I won’t have to have surgery and it’s an impairment I’ll just learn to live with. Cross that off the surgery list please!

Oh and my physical therapist says that maybe one day, if we can stop my heart from going over 170 bpm, I can learn to run again. That’s going to take a lot of medication for this tachycardia prone lady.

-Erika

P.S.- Lupus, please stop killing nerves.

P.S.S.- My wicked Grandmother just called. Why? Why? Why?


Thanks Lupus! Not Really.

Oh hey lupus, thanks for killing some nerve endings in my legs during my last flare. It totally explains the leg muscle weakness. Now I get to do more intensive physical therapy to retrain my muscles in my legs to work properly again. My brain, nerves, and muscles aren’t all connected properly and it’s created a hot mess.

On top of all of that, I have bursitis in my hips. And I can’t do cortisone shots because my white blood cell count is too low.

What will lupus attack next?

At least I have a cute doggy.

-Erika



For the cost of two 20 ounce Coca-Cola Zero’s, I received for free:

-Seven bottles of Suave children’s body wash.
-Three Degree Motion Sense antiperspirant/deodorant.
-Two packs of 12 count Bic Silky Touch shaving razors.
-Two containers of Palmolive Pure+Clear dish soap.
-Two packages of 10 count Bic Crystal pens.
-Two packages of 90 count Super Sticky Post-it Notes.
-$5 gift card to Target.

This is why I coupon.

-Erika


ahealthierlexie:

This is so powerful

ahealthierlexie:

This is so powerful

(via laurclick)


Pain is temporary!
An able-bodied person who has never experienced chronic pain and refuses to listen to those who have (via recklesslyhopeful)

Do not get me started on that “pain is weakness leaving the body,” bullshit, either. UGH.

(via maggiemunkee)

If pain is weakness leaving the body, then why am I not the size of Godzilla, tearing down sky scrapers, and throwing tractor trailer trucks wherever the heck I darn well please?

Seriously, so much pain throughout the years should mean that my weakness has left me and I’ve finally morphed into some sort of mega monster creature.

Sadly that hasn’t happened yet. Still just plain ol’ Erika. Not Erika-zilla.

-Erika

(via maggiemunkee)


It’s a terrible thing, I think, in life to wait until you’re ready. I have this feeling now that actually no one is ever ready to do anything. There is almost no such thing as ready. There is only now. And you may as well do it now. Generally speaking, now is as good a time as any.
Hugh Laurie (via lifeof-ty)

(via maggiemunkee)