Dear Old Bat

Apparently there is an Old bat at my Grandmother’s retirement home who doesn’t think I’m sick and thinks that I shouldn’t receive medical treatment for my lupus and that all of that money is being wasted on me.

Guess what OLD BAT?

JUST BECAUSE I LIVE WITH A DISEASE THAT HAS NO CURE DOESN’T MEAN I DON’T DESERVE A FIGHTING CHANCE AT LIVING.

I guess kids with cancer don’t deserve to get chemotherapy/radiation because technically there is no permanent cure for cancer.

I guess people with HIV/AIDS shouldn’t be allowed to get their medicine cocktails that hopefully help prevent their bodies from deteriorating.

Oh and here’s the kicker, the Old Bat said “You’re too happy to be sick!”

You want to know why I’m happy, Old Bat? I’m happy because I’m blessed that someone, somewhere has decided to “waste money” on me so I can receive medical treatments to LIVE.

I’m happy because my fiancé and I got some life changing news this past week and hopefully in the near future I will no longer be his fiancé, I will be his wife.

I’m happy because I fight a battle every single day that few people understand and I WIN that battle every single day.

Old Bat, you may think that “Obamacare” is wasting money trying to save my life, and that’s ok. Because I know the truth. My family and friends know the truth. There are people out there who believe my life is worth saving, even if it’s only for a little bit.

Not all of us will be so lucky to live to 80, Old Bat.

Bite Me Old Bat,
Erika


Weeeeee!

MY GRANNY IS HERE FOR THE WEEKEND:-) :-) :-)

I have been promised Menchies froyo tonight!

I get to go to the movies tomorrow (a rare occassion) to see a scary movie with my fiancé!

That is all. Sending happy thoughts to everyone out there:-)

-Erika


Feel. Like. Hell.

Someone book me a hotel room, a massage, a pedicure, and rent me lots of movies. For this infusion might be the one that does me in.

-Erika



Pardon the poor hand writing, I’m right handed but I had to write on my right arm with my left hand. As you can see, I decided to rename my liver function test. Hopefully I’ll have the results of my LIVEr function test by Friday.

Just keep living.

-Erika

Pardon the poor hand writing, I’m right handed but I had to write on my right arm with my left hand. As you can see, I decided to rename my liver function test. Hopefully I’ll have the results of my LIVEr function test by Friday.

Just keep living.

-Erika


rick2u:

Well, he’s no cockney gecko or exasperated duck, but I would buy insurance from this man.

Watch and learn how to be a better human being.

(via thunderdolt)


Months and months of anticipation have led up to this lovely moment for Michele. Her hopes and dreams were magically squished into a tin pie pan by yours truly. Michele was giddy and gleeful to have this one of a kind treat.

After Michele gave me a fabulous new chemo cut, she couldn’t wait any longer to slice up her giant peanut butter cup. That smile you see, that’s true happiness.

I’m so happy I could make one of my closest friends happy.

-Erika

Months and months of anticipation have led up to this lovely moment for Michele. Her hopes and dreams were magically squished into a tin pie pan by yours truly. Michele was giddy and gleeful to have this one of a kind treat.

After Michele gave me a fabulous new chemo cut, she couldn’t wait any longer to slice up her giant peanut butter cup. That smile you see, that’s true happiness.

I’m so happy I could make one of my closest friends happy.

-Erika


When your closest friend loves peanut butter and chocolate, you make her a giant peanut butter cup. Over five pounds of chocolate, peanut butter, graham crackers, and candies.

Starting from the bottom up.
Layer 1: Melted semi-sweet chocolate.
Layer 2: Honey graham cracker squares cut to fit the size of the pie pan.
Layer 3: My secret fluffy concoction of sweet peanut butter filling.
Layer 4: Melted semi sweet chocolate.
Layer 5: Reese’s Pieces candies border.
Layer 6: Melted Reese’s Peanut Butter Chips drizzle.

When my friend prompted me on why I made this for her, I replied “I finally had the energy to do this and after last week I’m grateful to be alive.”

Tomorrow the 9 inch round homemade peanut butter cup will be delivered to her hair salon. I’m getting my chemo hair cut, I’m tired of seeing it all on my pillow.

I also have to get a new pair of eye glasses. Thanks to my lupus and treatments, my vision changes so radically that I need two separate pairs, not including my prescription sunglasses. Thanks lupus for constantly degrading my vision!

I really want this shirt too, I think it describes my fight with lupus so perfectly. It only comes in a large and extra large. Luckily I love big shirts so a large would be perfectly comfy.

http://www.shoplupus.org/store/p/2773-Cruel-Mystery-T-Shirt.aspx

In patient chemo on Friday, fun fun! That’s in addition to my every twice a day chemo. I need to go get my liver function tested this week before my treatment.

Happy Monday night y’all!

-Erika

When your closest friend loves peanut butter and chocolate, you make her a giant peanut butter cup. Over five pounds of chocolate, peanut butter, graham crackers, and candies.

Starting from the bottom up.
Layer 1: Melted semi-sweet chocolate.
Layer 2: Honey graham cracker squares cut to fit the size of the pie pan.
Layer 3: My secret fluffy concoction of sweet peanut butter filling.
Layer 4: Melted semi sweet chocolate.
Layer 5: Reese’s Pieces candies border.
Layer 6: Melted Reese’s Peanut Butter Chips drizzle.

When my friend prompted me on why I made this for her, I replied “I finally had the energy to do this and after last week I’m grateful to be alive.”

Tomorrow the 9 inch round homemade peanut butter cup will be delivered to her hair salon. I’m getting my chemo hair cut, I’m tired of seeing it all on my pillow.

I also have to get a new pair of eye glasses. Thanks to my lupus and treatments, my vision changes so radically that I need two separate pairs, not including my prescription sunglasses. Thanks lupus for constantly degrading my vision!

I really want this shirt too, I think it describes my fight with lupus so perfectly. It only comes in a large and extra large. Luckily I love big shirts so a large would be perfectly comfy.

http://www.shoplupus.org/store/p/2773-Cruel-Mystery-T-Shirt.aspx

In patient chemo on Friday, fun fun! That’s in addition to my every twice a day chemo. I need to go get my liver function tested this week before my treatment.

Happy Monday night y’all!

-Erika


Why yes! Chester is wearing a cable knit sweater. Chester has assorted sweaters, t-shirts, pajamas, winter jackets, and a raincoat. Chester isn’t one of those dogs that hates clothes either. He gets all mopey if he doesn’t have at least article of clothing on. Chester also loves bow ties, he would wear a long tie, but he is a little low to the ground.

The reason why he is swearing a sweater when it’s warm outside is because our house is old and drafty. Chester gets very cold very easily. But during the summer he keeps his wardrobe light with a t shirt.

-Erika

Why yes! Chester is wearing a cable knit sweater. Chester has assorted sweaters, t-shirts, pajamas, winter jackets, and a raincoat. Chester isn’t one of those dogs that hates clothes either. He gets all mopey if he doesn’t have at least article of clothing on. Chester also loves bow ties, he would wear a long tie, but he is a little low to the ground.

The reason why he is swearing a sweater when it’s warm outside is because our house is old and drafty. Chester gets very cold very easily. But during the summer he keeps his wardrobe light with a t shirt.

-Erika


Chester has earned a new nickname, Toaster Strudel! He likes to cuddle under the covers while squishing himself next to me for about thirty minutes. Chester crawls out when he gets too hot. At that point he is the warmest, sweetest doggy in the entire world! It’s only right that I give him the nickname of Toaster Strudel.

If you look closely in the back of the picture, my Grumpy Cat stuffed animal decided to photo bomb.

We’re all just hanging out in my fortress of auto-immune sickness. Today I managed to drink lots of water, eat two Jello cups, one small biscuit, and one small bowl of Cheerios with almond milk.

-Erika

Chester has earned a new nickname, Toaster Strudel! He likes to cuddle under the covers while squishing himself next to me for about thirty minutes. Chester crawls out when he gets too hot. At that point he is the warmest, sweetest doggy in the entire world! It’s only right that I give him the nickname of Toaster Strudel.

If you look closely in the back of the picture, my Grumpy Cat stuffed animal decided to photo bomb.

We’re all just hanging out in my fortress of auto-immune sickness. Today I managed to drink lots of water, eat two Jello cups, one small biscuit, and one small bowl of Cheerios with almond milk.

-Erika