Today I participated in the Lupus Foundation of America’s 2014 Walk To End Lupus Now event! I exceeded my original goal for donations and raised $300 that will help to fund research and education for lupus.

I was able to design my t shirt using Sharpies, unfortunately it was too cold to show off at the walk:-(

Thank you to all who donated, including my Mom, Aunt Janet, Josh, Lynn, Beth, and Emily. I also want to thank everyone who has supported me with love and friendship over the years. I couldn’t fight this disease without you all.

-Erika


Anti-Abortion Whackjob Encounter

Anti-Abortion Whackjob: Would you like a pamphlet about how abortions are a sin?
Me: No, I would not. Thank you.
Anti-Abortion Whackjob: Are you ready to meet Jesus?
Me: Oh I am so ready to meet Jesus, but I'm not sure if Jesus is ready to meet you!

“You’re too pretty to be so sick.”

chronicallyclever:

image

Or the “You’re too young to be so sick.”

-Erika

(via beccaisstellar)


The Good, The Bad, And The Not Too Ugly

Catty doctor’s office receptionists are the worst. You are the first person a patient sees when coming to see that doctor. Please try to be positive and don’t talk rudely about patients even when the glass sliding doors are closed. We can still hear you!

But pharmacists who manage to override the system to make a medication go through insurance, that would otherwise cost $700, are awesome.

Though the would be $700 medication is another immune suppressant, just in time for cold and flu season. Oh well, it could be worse.

-Erika


worldaccordingtolupus:

Chronic Pain Awareness Month: a pic I designed for my page World According to Lupus www.facebook.com/worldaccordingtolupus

worldaccordingtolupus:

Chronic Pain Awareness Month: a pic I designed for my page World According to Lupus www.facebook.com/worldaccordingtolupus

(via cr8tifleeme)


"Ice, ice, baby!"

-Erika

"Ice, ice, baby!"

-Erika


Muscle Retraining

While muscle retraining therapy has hurt so bad, the reward is getting covered with bags of ice when I’m done. Surprisingly, that feels so good.

If I keep making progress like I am (like working insanely hard), I won’t have to have surgery and it’s an impairment I’ll just learn to live with. Cross that off the surgery list please!

Oh and my physical therapist says that maybe one day, if we can stop my heart from going over 170 bpm, I can learn to run again. That’s going to take a lot of medication for this tachycardia prone lady.

-Erika

P.S.- Lupus, please stop killing nerves.

P.S.S.- My wicked Grandmother just called. Why? Why? Why?


Thanks Lupus! Not Really.

Oh hey lupus, thanks for killing some nerve endings in my legs during my last flare. It totally explains the leg muscle weakness. Now I get to do more intensive physical therapy to retrain my muscles in my legs to work properly again. My brain, nerves, and muscles aren’t all connected properly and it’s created a hot mess.

On top of all of that, I have bursitis in my hips. And I can’t do cortisone shots because my white blood cell count is too low.

What will lupus attack next?

At least I have a cute doggy.

-Erika



For the cost of two 20 ounce Coca-Cola Zero’s, I received for free:

-Seven bottles of Suave children’s body wash.
-Three Degree Motion Sense antiperspirant/deodorant.
-Two packs of 12 count Bic Silky Touch shaving razors.
-Two containers of Palmolive Pure+Clear dish soap.
-Two packages of 10 count Bic Crystal pens.
-Two packages of 90 count Super Sticky Post-it Notes.
-$5 gift card to Target.

This is why I coupon.

-Erika